We need your participation in our study exploring the support needs and challenges experienced from diagnosis and birth through to toddlerhood!

May 13, 2025

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Are you a parent / guardian of a child with down syndrome ? Or are you a professional who works in a healthcare setting that works with children with down syndrome ?

We need your participation in our study exploring the support needs and challenges experienced from diagnosis and birth through to toddlerhood!

Who can take part ?

  • Parents, prospective parents, guardians and caregivers of children with down syndrome, aged 0-7.
  • Professionals who work in healthcare settings that support families / children with down syndrome.

Whats involved ?

  • One online or face-to-face interview about your experience and views of the needs, challenges and current supports available for families in the period around diagnosis and birth, infancy and toddlerhood

Parents Contact: mariapertl@rcsi.ie

Professionals contact: heibelm@tcd.ie